The Marfan Foundation's Science in Spain brought global experts together to share research on earlier detection, risk and quality of life.

The Marfan Foundation brings scientists from 23 countries to Barcelona to share research that may lead to new treatments and ...

The Marfan Foundation symposium in Barcelona connected people living with genetic aortic and vascular conditions with leading ...

Marie Law with her son, David. He is the only one of her five children who has Stickler syndrome. Marie Law, 63, says that in the first 20 years of her life, her “hypernasal voice” had prompted many ...

There’s a lot to be excited about at the 2026 Science in Spain gathering: world-class scientists and clinicians, new ...

When 13 of the original 15 Rent cast members reunited on a festival stage in Kingston, NY, this August, there were lots of songs and lots of tears. After all, the emotional performances in front of ...

Broadway pioneer, musical director of Rent, author of new book, Making Rent, and friend of Jonathan Larson and family Tim Weil knows firsthand the tragic potential impact of undiagnosed Marfan ...

A bundled-up crowd took part in the South Florida Walk for Victory on Sunday, 2/1 at T.Y. Park in Hollywood,, Florida. Foundation Board Chair Bert Medina gives a thumbs up at the Walk for Victory.

Note: This story discusses loss of a young person’s life due to a genetic aortic condition. Mike Osuna and Jeanette Garcia-Osuna remember the first time they heard the words “Marfan Syndrome.” Just a ...

30 years ago today, his loved ones, the theater community, and the world lost Rent creator Jonathan Larson at age 35 due to undiagnosed Marfan syndrome – a genetic aortic and vascular condition that ...