AI has the potential to help with hemophilia diagnosis and management, but more evidence is needed, a study found.
MacDonald bids readers farewell, she thanks her bleeding disorders community for following along with her story.
Guest writer Maria Relynda De Guzman shares her experience seeking diagnosis and care for her son's severe hemophilia in the ...
Columnist Allyx Formalejo shares insight into how being a parent with a disability affects their daughter as she grows older.
Columnist Joe MacDonald writes about developing a meditation exercise to counteract the long-term stress of his son's hospitalizations.
Columnist Jennifer Lynne writes about the free online screening her organization, Girls Bleed Too, will host on Oct. 8 for "Dismissed." ...
Here is something many people do not know about me: I spent a year studying industrial pharmacy. I don’t always think to mention it. After all, I never earned the degree. I had attended a science high ...
A branch of the European Medicines Agency (EMA) has recommended that the experimental therapy denecimig be approved to treat adults and children with hemophilia A, with or without inhibitors. The ...
Share this page with email Share this page on Facebook Share this page on X Share this page on Reddit Print Preferred Source on Google Hemophilia B is a genetic condition caused by missing or ...
Share this page with email Share this page on Facebook Share this page on X Share this page on Reddit Print Preferred Source on Google I never saw myself as an athlete. In middle school, I played ...
When I was diagnosed with hemophilia decades ago, I was 10 years old, and nobody asked me what I wanted. We now have factor products engineered to last longer between doses; non-factor prophylaxis ...
There’s a specific kind of exhaustion that comes from being asked — mid-appointment or on a call with my specialty pharmacy — to recall something my body has already tried to forget. When was your ...
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