AI has the potential to help with hemophilia diagnosis and management, but more evidence is needed, a study found.
MacDonald bids readers farewell, she thanks her bleeding disorders community for following along with her story.
When our sons were younger, my wife, Cazandra, and I struggled to balance our jobs, our relationship, and their very different needs. When our younger son, Caeleb, was between the ages of 5 and 8, ...
Hemophilia is a blood disorder that is characterized by a shortage of specific clotting factors that help to form blood clots and stop bleeding. Historically, the primary treatment for hemophilia is ...
Guest writer Maria Relynda De Guzman shares her experience seeking diagnosis and care for her son's severe hemophilia in the ...
Columnist Joe MacDonald writes about developing a meditation exercise to counteract the long-term stress of his son's hospitalizations.
Columnist Allyx Formalejo shares insight into how being a parent with a disability affects their daughter as she grows older.
Columnist Jennifer Lynne writes about the free online screening her organization, Girls Bleed Too, will host on Oct. 8 for "Dismissed." ...
My recent columns have focused on my experience at the National Bleeding Disorders Foundation’s (NBDF) annual Bleeding Disorders Conference, held Aug. 21-23 in Aurora, Colorado. I wrote about fun ...
Although no cure for hemophilia is currently available, a number of therapies can be used to control bleeding and other symptoms. These treatments can substantially increase life expectancy by ...
Centessa Pharmaceuticals is discontinuing the clinical development of SerpinPC, its experimental under-the-skin therapy for people with hemophilia A and hemophilia B with or without inhibitors. The ...
Nearly one-third of U.S. hemophilia treatment centers (HTCs) do not involve genetic counselors in patient care or refer patients for genetic counseling, despite widespread recognition among healthcare ...