The Marfan Foundation brings scientists from 23 countries to Barcelona to share research that may lead to new treatments and ...

Start here to begin learning about Marfan syndrome and related conditions. We offer a range of online and in-person resources to help you get started and learn more when you are ready. Learning ...

Learning you or someone in your family has Marfan syndrome can deeply affect the quality of life of the individuals and families coping with it. That’s why it’s important to get an appropriate ...

The Marfan Foundation's Science in Spain brought global experts together to share research on earlier detection, risk and quality of life.

The Marfan Foundation symposium in Barcelona connected people living with genetic aortic and vascular conditions with leading ...

Marie Law with her son, David. He is the only one of her five children who has Stickler syndrome. Marie Law, 63, says that in the first 20 years of her life, her “hypernasal voice” had prompted many ...

Early-career scientists are bringing their work—and their ideas— to the 2026 Science in Spain gathering. There’s a lot to be excited about at the 2026 Science in Spain gathering: world-class ...

Diagnosed with Stickler Syndrome 18 Years Ago, Marie Law, 63, says: “You Can Live a Full Life.” Marie Law with her son, David. He is the only one of her five children who has Stickler ...

If a dissection is suspected, a person needs immediate medical attention and should go to a hospital emergency department right away. What you can do: Unless someone has a known diagnosis of Marfan ...